Comments on: A Moment in the Life of an Autism Mom

By: Marita

Marita — Sun, 28 Mar 2010 06:50:51 +0000

It is those moments when you are out and about and you see another parent in the same place as you are that you realise “I’m not alone” and they are good moments. Now matter how difficult it gets and how others judge we are not alone, It is infinitely reassuring.

By: Andrea

Andrea — Fri, 30 Oct 2009 00:35:50 +0000

Michelle, thanks so much for your comment. Every mom that I talk to has said the same thing, the diagnosis was just more of a formality, deep down they knew. But I still held onto hope that it would be something else. For us the diagnosis wasn’t the start of our journey it was just a necessary roadstop to get access to services. I hope your appointment goes well and your Dr is understanding and informative, it sounds like you’re going to be well prepared. Regardless of the diagnosis, they’re still the same kids you walk into the appointment with and you love them as unconditionally as ever. I hope you keep us updated and let us know how it goes.

By: MICHELLE

MICHELLE — Thu, 29 Oct 2009 15:07:48 +0000

As a mother of another wheel lover, i felt as though i am reading about myself and my daughter.
we are still waiting for diognosis but as her mum, i know all is not as it should be.
our first appointment is in 3 weeks time and i am busy serching any family history and filling out CHAT forms to help arm me with all the information i can litterally throw at them!! I look forward to reading how your follow up appointment goes! keep enjoying your kids for the amazing little individuals they are, wheel spinners or not lol x

By: Andrea

Andrea — Mon, 19 Oct 2009 00:06:49 +0000

Kelly – I’m in tears reading your comment. Thank you so much for your kind words, they mean so much. I love that you follow our blog, your comments are always insightful and thoughtful. I love having a cheerleader so far away! What an incredible role model you are to your boys! As someone who used to be Type A personality and all about the pursuit of perfection, I have learned perfect has many different definitions.

By: ACarLessFamily

ACarLessFamily — Sun, 18 Oct 2009 08:57:40 +0000

I think you have a beautiful outlook on Autism. Look at the way that it has made you a mother who can be so observant and empathetic as to see another mother and child still in that period of hopelessness, the period where all you want is for everything to be NORMAL.

What is normal though?
Its a cliche of course but its so true.

One of my eldest boys classmates has cerebral palsy and also displays aspergers traits.
She definitely cannot read body language and has no concept of personal space. Because of this she often plays with the younger children, even when she has come to ours to play its my younger kids she tends to gravitate towards.

Her mother is very shy and always worried about how things seem…when she had a play date with us and I said to pick her up @ 2pm (so she was here @ 4hrs with lunch)she asked me several times “are you sure ?? I can pick her up earlier? Its no problem!”

I practically had to throw her out the house! lol.

Anyway of course it was fine, she was hard work near the end, asking the same questions again and again, needing help off Ollies deck bed every few minutes, but it was fine.

I love following your blog and seeing how your journey with Tristan pans out. Its opened my eyes to the spectrum and made ME more observant in the park and in town.
I try and encourage my kids to go say hi and play with the child the other kids are shunning.
There is much to be found in all relationships and I hope they continue to understand that as they get older.
I hope you get to extend a hand to the mum in the park who’s little boy loves wheels, I hope you get to tell her its not a frightening place to be.
Autism has given you the gift of not being the “perfect” mum with the “perfect” kids, Tristan will be able to be himself without the cage of “what is appropriate”.
You guys are strong enough and that’s why you have him xx