Autism: Disability, Disease or Difference?

Wednesday January 27th, 2010 // Written by Andrea

Austism Disability, Disease or DifferenceThere is a lot of discussion in the autism community about a cure for autism and treatments for autism. And the autism community is definitely divided over this issue. Many people see autism as just a difference and not a disability or disease and refer to those who would treat their child as “curebies”. On the other side of the fence there are people who feel autism is a disease that needs to be treated and one day cured. People on both sides are obviously very passionate about their position.

I’ve given this debate a lot of thought. When we first found out Tristan had autism I wanted to do everything in my power to ensure he would lead a “normal” life, whatever normal means. Now that I have had time to think more beyond each day with Tristan and see into his future, I see that I really don’t want to “cure” him. Make no mistake I want to give him the tools to be able to communicate effectively, form relationships, be a functional person in society and not be marginalized. But I also never want him to feel like I thought he wasn’t good enough or hasn’t recovered enough for me, I never want him to feel like we tried to change who he is fundamentally.

I believe autism is a difference, most individuals with autism see and sense the world differently from those without autism. However, I also believe in some cases autism is a disease, or better yet the autistic symptoms that are exhibited are the result of a diseased state in the body, that there is a gut-brain connection. Most kids with autism have gastrointestinal and other comorbid conditions and this can definitely have an effect on cognitive and other functions. If you don’t agree with the gut-brain connection just think back to the last time you got drunk.

I feel this whole argument of autism being a disorder or a difference really all boils down to the cause of autism. For people who believe autism is just a difference, they probably believe that autism and its traits are purely genetic or mostly genetic. And maybe in some cases it is. But for Tristan and many others this is not the case. Tristan has definite physical problems that have caused him to have autistic traits, and as we’ve changed his diet and added supplements, we’ve seen these traits lessen and disappear. Not to mention that there is no history in either Odum’s family or mine of developmental disabilities. Maybe Tristan does have some sort of genetic predisposition that caused caused him to be more vulnerable to toxins and poisons in the environment and maybe this is what led to him having autism. As a scientist one of my favorite sayings is “genetics loads the gun, its the environment that pulls the trigger”. Tristan was not born with autism.

So yes we are treating Tristan, we would be negligent as parents not to. Tristan had gastrointestinal problems, he has yeast overgrowth and vitamin deficiencies. Is it a coincidence that as we treat these problems his behavioral and developmental problems improve, I don’t think so. I think the people who tout autism as solely a difference may have only seen mild cases of autism, or not watched their child regress and become a shell of their former self. I almost wonder if these same people would call a physical disability a difference and berate parents for obtaining physical therapy for their child.

So what do you think, is autism a disability, disease or a difference?

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2 comments in the discussion so far...

What do you have to say about it? Don't be shy, join the converstation, we'd love to hear what you think.

  • I saw a status “copy and paste” going round Facebook a couple of weeks ago that made me cross. It went along the lines of “Autisim is NOT a disease, accept our children for who they are you can’t cure it” or something like that.
    The complete “I’m right you’re wrong” tone of it made me feel really angry.

    I have no first hand experience of anyone I know has been diagnosed on the spetrum (although maybe one or two who havn’t) and so I can only go on what I read on blogs like this.

    If your child has a treatable problem then absolutly you should fix it, but I think the ideal mindset to have is one of a “day at a time”. One where you don’t have a fixed idea or your ideal child to stand next to your autistic child, but one in where you relish the milestones and watch them grow and thrive..like any parent.

    Many children who are diagnosed autistic manage to live independant adult lives, and that was BEFORE all that parents know now!

    YOu do what you can with the tools you have and you will help your child becaome all he can be. x

  • Its that whole mentality of I’m right, your wrong that gets me steamed. Everyone affected by autism needs to work together and not battle and not judge each other. Autism is a spectrum and while biomed is working amazing for us, it might not work on someone else or the parents just don’t feel its right for their child. And I can respect that. As parents you don’t get a manual and you have to go with your gut and what you feel is right. And there are more questions about autism than answers right now and I really feel like people need to keep an open mind. And your right Kelly, you have to love the child you have and accept them for who they are at the end of the that’s what matters.

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